Whoa

Has it really been more than a month since I’ve posted? It has indeed and what a month plus–lots of water roiling under that bridge.

So where to jump back in…perhaps with my last scan result, which I think I just sort of skipped over. Things look really, really good with the worrisome area in my right lung settling down; maybe even receding a little. I have scans again in five weeks and in the meantime I’m just going to keep busy with lots of positivity. To that end a friend of mine shared that he felt certain I was ‘healing’. It took me aback at first. I’m a truly optimistic person but the notion of healing just seemed over the top–that is, until I looked at that word in a holistic sense and then I realized he was absolutely right. Between mind, body and soul I am feeling extraordinarily healthy–maybe even the best ever (and I’m sure tomorrow will top today).

I’ve had a couple of truly meaningful adventures (all three thanks to LUNGevity) since I last posted. On October 21st I had the privilege of attending LUNGevity’s 2016 Science Meeting; an annual event where grantees (a big part of LUNGevity’s mission is funding medical research in lung cancer) in the areas of Career Development, Early Detection and Targeted Therapeutics gave five minute presentations in addition to a poster session about the progress they are making. It was sort of like a mini ASCO up close and personal but focusing exclusively on lung cancer.

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And then on November 9th I traveled to NYC for LUNGevity’s Celebration of Hope, their annual gala held at the beautiful Mandarin Oriental. It was an incredibly special night all the way around. Andrea Ferris, Linda Pressman Wegner, Dr. Upal Basu Roy and the rest of the LUNGevity staff feel like part of my extended family now and it is always fun and inspiring to spend time with them. My dear friend Melinda Lee was my date for the night and Rob Densen and his daughter Arielle, fabulous friends of mine that I see too seldom, joined us. And of course, some of my fellow survivor/advocates/friends were also in attendance–Alisa, Dolio, Amanda. Always good to hang with them.

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I suppose I would be remiss if I failed to mentioned that I was honored that evening with the Survivor Face of Hope Award. I should also add that this meant the world to me, coming from an organization that I have so much respect for. And although some in attendance hoped I’d give a speech without notes (think HOPE Summit 2016) I stuck to the script–I absolutely cannot be trusted to be spontaneous, for a whole variety of reasons.

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Photo by Alisa Kaye Brenes

Well, I’d barely gotten my bags unpacked when it was time to leave for Indianapolis and a tour of the Lilly Labs. My inner geek was thrilled–interacting with members of the Lilly team and a few cancer cells as well–viewed at a safe distance through the microscope. And of course, I also got to spend some quality time with my fellow advocates. Never a dull moment!

Matt, Katie, Linne, Melissa and Kelly.

Matt, Katie, Linnea, Melissa and Kelly.

14 responses to “Whoa

  1. Congratulations on being the Face of Hope for Lungevity. quite an honor and well deserved. You are an inspiration from afar for me and many.
    I like the word “healing”. When I think of that word I have one immediate thought but the word holds many meanings. I hope you stay in the constant state of healing. Press on. Patty Watkins

    • Patty, Thank you. I had that immediate thought as well (as to what healing implies) and wondered if he’d misconstrued my own values/belief system, but I can live with (!) how he explained healing and have found that I really like thinking of myself in that light.

      Linnea

  2. Love your updates and hearing of this special award. No wonder you haven’t posted lately — you’ve been way too busy! Here’s to more healing.

  3. Big congratulations on your award. So happy for you and proud of all you have done for those of us with lung cancer. You are a true inspiration and a role model. Thank you for your positivity and your guidance.
    Stay strong.

    • Thank you Roni. You know I am just happy that I am able to advocate and to represent my peers; that is the true honor and privilege.

      Linnea

  4. Couldn’t think of a better person to be honoured! Congratulations. What a truly cool experience getting to visit the Lilly labs, I’m jealous 😉 Or at least the nerd on me is. I love following you because you inspire me everyday. Wishing you continued good health and many more adventures.
    XO Anne Marie

    • Thank you Anne Marie 🙂 I wish you could have been on that tour with me! Cancer cells are not so frightening when they are sandwiched between two glass slides and some of them are actually quite beautiful. xo to you as well!

      Linnea

  5. Grand news all the way around! Your award is well deserved, and I’m delighted that lorlatinib is hanging in there for you.

    • Thank you Anita—this was one that meant so much to me. And I too am delighted that lorlatinib is hanging in there.

      Linnea

  6. Congratulations on your awards, awesome experiences and scan results. You are such an inspiration and beacon of hope for Jeff and I.

  7. Sounds like an event- filled month. You deserve the honor- i have said since i first “met” you online that you give me hope every day. Thank you

  8. How are you doing out there? Its been longer than usual since you posted. I hope all is well.

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