Tag Archives: attitude and cancer

Getting the joie back in the vivre

I’ve been on drug (LDK378) again for over two weeks now and my liver enzymes look great. Business as usual, but with a less than subtle change; it is increasingly obvious that my formerly sunny attitude has lost some sparkle.

Sustained stress can be a real buzz killer, and we are attempting to address several sources of anxiety on the home front. However, even as the potential for greater serenity becomes a reality, I am aware that something else is missing.

Somewhere along the line, between work and worries, joy has been neglected. The Merriam-Webster online dictionary defines joy as such:

1
a : the emotion evoked by well-being, success, or good fortune or by the prospect of possessing what one desires :  delight  b : the expression or exhibition of such emotion : gaiety
2
: a state of happiness or felicity : bliss
3
: a source or cause of delight

As I read these words, joy seems very far away indeed. Although relieved that I could stay on trial, I cannot shake my unease as to what is next. With scans every six weeks, and automatic expulsion from the trial once statistical progression has been reached (20% by RECIST standards), I am unable to settle.

It has been my intention to channel the underlying angst I am feeling into proaction; I am staying very busy, with particular focus on researching and realizing some opportunities for Peter. Last night David expressed gratitude for my hard work, and to have his recognition felt good.

However, even a flurry of productivity isn’t always enough to keep sadness at bay, and on those occasions when depression simply flattens me, I grab a book and head to bed.

Pema Chodron, a Tibetan Buddhist nun, is the author of several books in which I found great solace following my initial diagnosis with lung cancer. I am reading those books again, starting with When Things Fall Apart–Heart Advice for Difficult Times. The following paragraph offers apt resonance:

“Things falling apart is a kind of testing and also a kind of healing. We think that the point is to pass the test or to overcome the problem, but the truth is that things don’t really get solved. They come together and they fall apart. And then they come together again and fall apart again. It’s just like that. The healing comes from letting there be room for all of this to happen: room for grief, for relief, for misery, for joy.”

The word joy shines like a bright jewel at the end of that passage. Regard the company it keeps; grief, misery, and the somewhat pedestrian relief. All mixed up together.

I think, perhaps, I have become preoccupied with fixing things. In a rush to identify what is broken, my perception has become selective. Seeing what is wrong, I am missing what is right. It seems obvious, and simple really.

But it’s not. Life is complicated and so am I. However, a determined student, I find myself ready and willing to take my lessons when and where they come. I shall start by welcoming joy back to the table; to let wonder and delight be part of the conversation again.

Beauty and the background

Trying to stay out from under the weather

Yesterday school was cancelled and we did our best to stay snug in the house as a blizzard roared outside.  More inclement weather was brewing inside, as we’ve all fought a virus off and on for several weeks now.  I’ve developed a cough over the past few days, and ever since my diagnosis, it is hard for me to view this symptom as benign.  In addition to worries about recurrent cancer, (always part of the background noise), we are now anxious about H1N1 flu.  There has been no shortage of hype regarding this illness and its potential to burrow deep into our lungs.  What there has been is a shortage of vaccine, and despite my continued queries, I have been unable to secure a dose for any one of us.  You would think that people with lung cancer might be in one of the early tiers, but that is simply not the case.

Anyway, what we are dealing with is likely just a garden variety virus.  In addition, the snow petered into sleet last night and today the sun is shining.  I always find it easier to have a positive, or sunnier, outlook when that is the case.  My attitude is something else I no longer view as inconsequential or benign.   When I was initially diagnosed, I was frightened, angry and depressed all at the same time.  I didn’t even try to fight these feelings.  They, in fact, felt like a totally justified response to the set of circumstances.

Justified or not, once I got all that sadness and rage out of my system, it was time to move on.  My dark mood evolved into dark humor, as I once again felt the necessity of laughter.  Eventually, heeding the advice of my oncologist, I sought counseling and began taking an antidepressant.  Both were extremely helpful to me.  At a certain point I felt I no longer needed either the medication or the counseling.  However, when it was confirmed that my cancer had spread to both lungs, I needed no urging to return to both practices.

You see, I really want to do whatever I can to promote my survival.  I take my medicine, I do my best to eat well and to keep moving (excercise when possible, but just keeping busy when it’s not) and I pay a lot of attention to what is going on in my head.

I read a really interesting quote from the book The Survivor’s Club, by Ben Sherman.  He said, “The twin enemies of survival are fear and inflexibility.  Fear is demotivating and paralyzing.  Inflexibility means that you don’t adapt to the new reality.”  Part of my new reality is living with a terminal illness.  I really need to be at the top of my game so as not to let that paralyzing fear get the best of me. Having my head in a good place is going to make a big difference when it comes time to weather the storm.