Wowza! Fast forward to 2020. Somehow, someway, I am still here. I got more than five years out of lorlatinib but had to combine it with chemo last fall (carboplatin and alimta). Not I am in my fourth phase I clinical trial for a novel therapeutic that is mutation agnostic, call DS-1062. It is a trophoblast cell-surface antigen 2 (TROP2) targeting antibody drug conjugate. Although not cancer free (never been NED but Not Dead Yet, as I like to say), I am living la vida loca. Making art, writing, advocating and activating for other cancer patients and going on adventures. Loving life and happy for every moment longer I get to stay.
The video is old—but a goodie so I’m hanging onto it. Enjoy. ❤