Tag Archives: coping with side effects of chemotherapy

Hold me

I am at a tough place. Physically, financially, emotionally.

Moving again combined with chemotherapy plus lorlatinib has been more difficult than I imagined. I am exhausted and raw–figuratively and literally.

In December my five years of alimony came to an end. The previously draconian divorce laws in NH have been revised, and were I to be divorced now, I would have received alimony for up to one half the length of my marriage. I asked for an extension which was summarily denied (no surprise). I don’t qualify for disability (not enough work credits–being a stay at home mom bit me in the ass–hard) so I am going to have to have to rely on my retirement fund. It is all very stressful and yet small potatoes compared to my health issues.

Breathing. So simple and yet not. Thus far no indication that chemotherapy is making a positive difference. Which of course makes the abundant side effects less tolerable as well. And then there is the mind fuck of pushing ahead with the belief that this is all for a reason while also understanding that in fact I may just be making myself sicker with no resultant benefit.

On Monday I was given the option of forgoing chemo. My response was ‘hit me.’ I need to believe that I am accomplishing something.

There is also the reality that I am essentially going this alone. That the dog still needs to be walked and I need to eat, neither of which is going to happen magically.

I have no doubt I shall get through this. It is what I do. But it also occurred to me (again) today that perhaps the worst part of being alone is having no one at my side. That human touch and warmth would do far more toward making me feel whole than a meal or a walk for my dog (things I can do myself).

Well. I am not one to let conventionality stand in the way. If you’re a close friend of mine and within driving distance, don’t be surprised if I hit you up for a sleepover. Nothing fancy. Not sexual.

Just hold me.

xo

Whose minding me now

Oy vey. Yesterday I cleaned out the back of my car and found an unopened Christmas gift. To me. Signed with ❤ Me. And I have no idea who Me is.

My memory has suffered some very big hits in the past few years. What heavy drugs (platinum chemotherapy) didn’t take, my current therapy—designed to cross the blood brain barrier—has.

At first it was beyond distressing, this wiping of my memory. I am someone who always tries to look at the bright side and if there is a bright side to cognitive challenges it might be that you view the world in a more child like way again. Everything is fresh, if you will. For an artist that can be a good thing, and I think it was maybe useful to leave some baggage behind at a time in my life when I was starting over.

Gradually many of my memories are returning, but as they went missing for so long my relationship to them is not as solid as I would like it to be. When I try to recall something often parts are missing and I’m just not certain about the details. It’s really frustrating and sometimes very sad. But It is what it is. I am alive and well and making new memories.

Dammit Doll

Back to my gift. Inside was a funny little Doll with this written on it’s chest: WHENEVER THINGS DON’T GO SO WELL, AND YOU WANT TO HIT THE WALL AND YELL, HERE’S A LITTLE DAMMIT DOLL, THAT YOU CAN’T DO WITHOUT. JUST GRASP IT FIRMLY BY THE LEGS AND FIND A PLACE TO SLAM IT. AND AS YOU WHACK THE STUFFING OUT YELL “DAMMIT! DAMMIT! DAMMIT!”

And as if that weren’t enough to make it all better, there were also two boxes of bandaids. One with big girl pants on them and the other with smiley faces and positive affirmations. Someone is looking out for me—now just help me remember how/who/where my lovely gift came from!