Category Archives: ALK+, progression

Holding it together; each other

*A hug is a form of endearment, universal in human communities, in which two or more people put their arms around the neck, back, or waist of one another and hold each other closely. If more than two persons are involved, it is referred to as a group hug.

The origins of the word are unknown but two theories exist. The first is that the verb “hug” (first used in the 1560s) could be related to the Old Norse word hugga, which meant to comfort. The second theory is that the word is related to the German word hegen which means to foster or cherish, and originally meant to enclose with a hedge.[1]

*Thank you Wikipedia 🙂

And I hope all of you felt the power of that group hug just as clearly as I did.

Because really, there is nothing quite like a hug. Akin to the word ok—it doesn’t overpromise. Unlike a kiss, which suggests greater intimacy, a hug can happen anywhere, anytime, and between total strangers. And like ok–it can soothe, calm, provide momentary comfort.

Most importantly, it reaffirms our connection to others, reminding us that we are in fact not alone.

And that’s why it had to be a group hug. I got squeezed but I was squeezing back hard. I know I’m not the only one going through a tough time right now. Lung Cancer is a ruthless disease–those sucky survival stats are not just for show. And even though those of us with a targetable mutation have seen a dramatic increase in five year survival rates, it’s like playing poker. There are a limited number of cards in this deck and once they’ve all been dealt it’s a whole different game.

So, my tribe, my fellow travelers. Let’s hold each other tight.

In serious need of some mojo

Plum out of that good stuff.

At the moment, my biopsy is three weeks away. Not so far really and yet also not close enough. Nebulosity. The in between. And for someone who is information driven (that would be me), not a lot of purchase.

I have the best oncologist in the world. There is no doubt she will come up with something but there is also no denying my options are limited. That pesky G1202R mutation that I acquired while on ceritinib has me backed into a corner. Fortunately lorlatinib overcame that particular resistance mechanism.

It was heady stuff; feeling good, and I had a mighty good run. But I also got a little carried away as I allowed myself to believe that maybe, just maybe, I was cured.

Yep. That was fun while it lasted. But now I’m ready to rumble, so to speak.

In the meantime, I am grateful for my formidable group of friends. After my last blog about the over the top copay for Advair, I received lots of offers for assistance. Linda S. got right on it and overnighted me an inhaler. Mucho mucho gracias darling–I am breathing easier because of it. And thank you to the rest of you as well.

But back to that missing mojo. It has been my experience that the best way to refresh that particular feeling is a giant group hug.

So lean in y’all. And squeeze extra tight.

xo