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Search Results for: Don't call me partner
Don’t call me partner
Warning: this may be the most contentious blog I’ve ever written. That is because I am about to desecrate a sacred cow–the idea of patient as a partner in medical research. Lovely in notion, the reality is something quite different and … Continue reading
Sigh.
Just another way in which I am between a rock and a hard place. I need pharma. Obviously, they have also needed me. Or, at least, someone else with a similar genetic profile and the balls to join first in … Continue reading
Hitting that glass ceiling
I had to be in Boston bright and early yesterday morning for an echocardiogram. The technician noted that this was my 36th echo, and that she thought that was probably a record. Honey, don’t get me started. I’m in the … Continue reading
The financial toxicity that is part of staying alive
Cancer is big business. Yep, I said it. What is a devastation for us, as individuals, is an opportunity for others. I have sat in on meetings where that word opportunity was bandied about as if I, an opportunity myself, … Continue reading
Dear Pharma;
For all but one of the past seven years I have served as a peer reviewer for the CDMRP. It is perhaps the toughest form of advocacy that I have undertaken but also one of the most rewarding. I never … Continue reading
Posted in Clinical Trials
Tagged CDMRP, cellular damage CT scans, clinical trials, stage IV lung cancer
A Bear behind
I’ve been gone for awhile now and I feel a stranger in my own blog. I apologize for such an extended silence—I know that in this community the lack of an update is worrying. So let me start by saying … Continue reading
Tales from the hood
So what’s been going on here aside from swimming laps and the eating of greens? We had a lovely Fourth of July. After dropping Peter at a party, David and I picked up our dinner at a farm stand. I … Continue reading
Posted in Lifestyle, Living with lung cancer
Tagged cheeky teenagers, medical marijuana, stage IV lung cancer
Cancer is my day job
And sometimes I just have to call in sick. I take this blog seriously; so much so, that even though there is no time card to punch and no pay check at the end of the month, I really feel … Continue reading
life and breath: outliving lung cancer 