TPX-0131

A fourth generation ALK inhibitor provided to me by Turning Point Therapeutics through compassionate use.

At 1:30 pm today I took the first dose. Before handing me the tiny tablet (it is one mg), Dr. Lin and my nurse Heather performed a little ritual—a blessing of sorts. And then, down the hatch.

By Dr. Lin’s estimate I am the third person in the world to take this drug (it is in clinical trial in Australia) and therefore it is impossible tp predict side effects.

Truthfully, I am far more interested in efficacy. And the thing is, if this experimental therapeutic is going to be effective for me, I may know very soon. Likewise if there is no response.

After dosing I hung out at the hospital for an additional two hours of observation. I squeezed in my second nap of the day (I had been there since 7:30 am) and when I awakened I just had this sense that something was going on in my body. Something good.

So light some candles. Cross some fingers. Have a chat with the universe on my behalf.

xoxo

18 responses to “TPX-0131

  1. Woohooooo!! ❤️⭐️🦋🧚‍♀️

  2. My fingers are crossed and I am chatting away for you.

    • All my Prayers and energy, good vibes go out to you and every single fighting cell in your body… the Army is out to kill the enemy ( cancer). Please keep me updated. Que el señor Jesús Cristo ponga sobre ti su mano y te llene de vida y energía para combatir el Cancer. Que esto se así para su Gloria… Amén

  3. My husband just read your post and he’s right now saying a prayer for you….I’m a stage 4 cancer patient giving you my prayer as well Linnea.

  4. This is WONDERFUL! Dawn Sent from Mail for Windows From: life and breath: outliving lung cancerSent: Thursday, August 12, 2021 5:14 PMTo: gdhorner5@gmail.comSubject: [New post] TPX-0131 linnea11 posted: " Heather, Linnea, Jess A fourth generation ALK inhibitor provided to me by Turning Point Therapeutics through compassionate use. At 1:30 pm today I took the first dose. Before handing me the tiny tablet (it is one mg), Dr. Lin and my nurse Heather p"

  5. Always!👈🏼✊🏼❤️🙏🏼

  6. All of the above, and then add all the gods of the Greeks and Romans. Praying, holding you in light, and thinking every positive thought I can come up with. You are loved.

  7. 🙏🙏🙏🙏

  8. Candles lit, fingers crossed, a chat with the Universe, my higher being… something really good is going on..
    always so grateful, so appreciative for YOU
    💞

  9. Will do!!!

  10. Definitely fingers crossed and xo to you

  11. Reminded me of. Elton….Hold me closer tiny cancer

    Sent from my iPhone

    >

  12. Yes, Linnea, we chat every morning for you. So glad you were able to do this!

  13. Gonna light so many candles the fire department will get called! xoxo xoxo

  14. Hi
    Wonderful! So glad to hear.
    How to apply for the 4th generation ALL inhibitor for compassionate use?
    My mother has started taking the third generation and it’s not working well.
    Meanwhile could you share your medical history and previous treatment? Many thanks
    Looking forward to your reply.

    With best regards
    Ginger

  15. Linnea, we are praying for you and thinking about you in Texas. You have such a wonderful way about you and such a tender and humble, yet tenacious, warrior spirit. Let’s give this cancer a good kick in the rump, once and for all! You are loved.

  16. Beth W Thomerson

    Positive thoughts and prayers and lighted candles! Love and light and also imagining the pop rocks effect on the cancer!

  17. All my Prayers and energy, good vibes go out to you and every single fighting cell in your body… the Army is out to kill the enemy ( cancer). Please keep me updated. Que el señor Jesús Cristo ponga sobre ti su mano y te llene de vida y energía para combatir el Cancer. Que esto se así para su Gloria… Amén

Leave a Reply to Gregg Cancel reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s