Update

That’s my optic nerve—left and right eye.

So, I’ve been busy jumping through hoops. Consent form signed. Labs taken. EKG and ECHOcardiogram performed. Eyes examined–that was a big if–but my retinas look good. All that is left is a brain MRI–which should not pose any issues.

A week from today I shall have my biopsy. The following day, I am to start the trial for Lorlatinib in combination with TNO155–a SHP2 inhibitor.

Had I not been to this particular rodeo so many times before I might be anxious. Or maybe a little bit excited. I am neither. What I am is tired. But also hopeful.

Always hopeful.

xo

3 responses to “Update

  1. Hopeful is good!๐Ÿ‘ˆ๐Ÿผโค๏ธ

  2. Iโ€™m hopeful too!!๐Ÿ’“๐Ÿ’ช๐Ÿผ๐Ÿ‘๐Ÿผ๐Ÿ˜Ž๐ŸŒธ

  3. Just want you to know that I – Kristen – am still following you! I donโ€™t comment as much since my messages tend to be repetitive BUT I read all your posts, I think of you often, I admire your incredible writing and your COURAGE, and am inspired by you daily. I followed you first when you lived in Texas and I was reading and researching all things Marfa! But you moved, and I became a general follower, including learning about the downs and ups of lung cancer and trials! I just wanted to check in to say Iโ€™m not very prominent online but I am with you in spirit during this journey. You are an amazing human!! Sending love. Kristen Miller Aliotti

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