So, I’ve been busy jumping through hoops. Consent form signed. Labs taken. EKG and ECHOcardiogram performed. Eyes examined–that was a big if–but my retinas look good. All that is left is a brain MRI–which should not pose any issues.
A week from today I shall have my biopsy. The following day, I am to start the trial for Lorlatinib in combination with TNO155–a SHP2 inhibitor.
Had I not been to this particular rodeo so many times before I might be anxious. Or maybe a little bit excited. I am neither. What I am is tired. But also hopeful.
Always hopeful.
xo
life and breath: outliving lung cancer 
Hopeful is good!👈🏼❤️
I’m hopeful too!!💓💪🏼👍🏼😎🌸
Just want you to know that I – Kristen – am still following you! I don’t comment as much since my messages tend to be repetitive BUT I read all your posts, I think of you often, I admire your incredible writing and your COURAGE, and am inspired by you daily. I followed you first when you lived in Texas and I was reading and researching all things Marfa! But you moved, and I became a general follower, including learning about the downs and ups of lung cancer and trials! I just wanted to check in to say I’m not very prominent online but I am with you in spirit during this journey. You are an amazing human!! Sending love. Kristen Miller Aliotti