Daily Archives: March 17, 2021

Like a whisper

“I came to live out loud.” Emile Zola.

And so I did. But over the past week or so I have been living quietly. Grieving, as yet another friend passed. A person too bright, too young, too loved. And yet, too soon gone.

Healing. I have a lot of healing to do. Physically and emotionally. A respite, if you will, before the next trial.

My latest scans were essentially stable. Not according to the radiologist, who saw progression. My oncologists always review the scans themselves, and Jess felt they were unchanged. I’ll go with her assessment.

As far as next course of action, I will likely enroll in the Lorlatinib/SHP2 inhibitor trial.

My big concern is that like binmetinib, a MEK inhibitor, SHP2 inhibition has the potential for retinal side effects. So that is an if for me.

However, by the time I would start, there should be several others enrolled and therefore additional data per potential adverse events.

In two weeks, I will check in with my team. In a month, scan again. And then, maybe, rock and roll.

In the meantime, this space traveler is enjoying the hell out of not feeling like shit.