The wild blue yonder

So it’s official. Another one (therapy) bites the dust.

I spoke to Jessica Lin this morning and I shall not be going back on binimetinib. Hopefully the ocular toxicity I have experienced is reversible. I’m thinking it is. However, were the retinopathy to progress–as it likely would should I continue on any dose of binimetinib–my vision could be compromised. And that’s not acceptable.

Dr. Lin and Dr. Shaw are already in conference per my case. It bites to have an effective therapy waylaid because of side effects. But it happens.

Uncertainty. Once again, embraced. Because right now it is the only thing to hold on to.

5 responses to “The wild blue yonder

  1. This sucks but I have faith in you and your amazing team of Doctors!✊🏽❤️

  2. Debbi Martinez

    I am so sorry to hear this. You remain in my thoughts and am holding you in the light. Wishing you comfort in this time of uncertainty.

  3. Janet Vrettos

    Something good will come from this. Being on this drug gave time for the better one to develop.

  4. Sorry to hear this. I am in the wild blue yonder too. Hope we both have luck

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