Daily Archives: March 5, 2021

The wild blue yonder

So it’s official. Another one (therapy) bites the dust.

I spoke to Jessica Lin this morning and I shall not be going back on binimetinib. Hopefully the ocular toxicity I have experienced is reversible. I’m thinking it is. However, were the retinopathy to progress–as it likely would should I continue on any dose of binimetinib–my vision could be compromised. And that’s not acceptable.

Dr. Lin and Dr. Shaw are already in conference per my case. It bites to have an effective therapy waylaid because of side effects. But it happens.

Uncertainty. Once again, embraced. Because right now it is the only thing to hold on to.