I am in some sort of semi agitated/unsettled state. It seems I can’t keep my eyes open. But I also cannot sleep. Last week I tried Ritalin and although day one was great (focus! oh rapture!) I also vomited. As binimetinib can make me nauseous I attributed it to that but day two of Ritalin I was intensely sick to my stomach again. And, oddly, sleepy. I took a three hour nap–in the morning. Day three, sleepy, vomiting and there was no day four. Over the weekend I held my binimetinib, in case that was the cause of my droopy eyes.
After emailing Jess about this effect yesterday, I heard back from my scheduler today, asking if I would come in for blood work and possibly a transfusion. The latter because I have also been trending more and more anemic.
In I went, but wouldn’t you know it, my hematocrit had gone up a point and a half. Mystery not solved. The plan for the moment is to continue to hold the binimetinib and I am starting on some prescription iron tabs as well. We shall see.
In the meantime I went to bed tonight around 9:30. My brain was ready but my body was not. First I tried the shaky leg thing, but when that did nothing (sometimes it’s soothing) I found myself making shadow animals on the ceiling. Turns out I’m still pretty adept at rabbit, llama and giraffe.
I was making myself mad though as continuing to lie in bed when you cannot sleep is very quickly fucking annoying. So I got up and made a cup of tea. And now I’m writing a blog. In a couple of minutes I’m going to wheel that bike over to the garage and give sleep another go. Hopefully body and brain will be in accord.
Sleep very soundly Linnea.😘