Just another evening in paradise. Baking a cake, because tomorrow is my daughter Jemesii’s thirty sixth birthday.
Also memorizing my lines (Evalynn Linnea Olson, 11/26/1959) for my debut in yet another trial. Crack o dawn and I’ll be on the road to Boston and my lead in dose.
I’m preparing mentally for the rigors of this new role. A host of side effects with the most common being:
increase in cholesterol and triglycerides which can increase your chance of heart disease and stroke
damage to nerves in arms, legs, feet or hands causing tingling or numbness
slowing of speech
vision changes
fatigue
rash, acne, or skin irritation including redness, raised bumps, dryness or itching
swell or fluid retention in the abdomen, arms, legs, hands, feet, face, or eyes
muscles spasms, muscle pain, or inflammation
nausea
diarrhea
Some of this is old news to me, as I spent more than five years on lorlatinib. The zits are something I’ve not experienced since my brief tenure on tarceva in 2008. I am relieved that my hair is growing back. Better not to be bald and broken out. Whoopee!–In a deal with the devil sort of way. Signing on for whatever may come because I love life so fucking much.
There is no poetic justice here. Just a strong stomach for discomfort and an even stronger will to live.
Bring it.
life and breath: outliving lung cancer 