Daily Archives: November 9, 2020

The horses are out of the barn

The decision to start the new trial in a week was a good one. Results from my scan on 11/6 show growth compared to the scan on 10/26.

Increased size of left upper lobe masslike consolidation now measuring 42 x 17 mm, previously measured 38 x 14 mm. There are multiple solid and part solid nodules in the left upper lobe, some of which have increased in size for example a 7 mm nodule (series 6, image 230), previously 5 mm, and 11 mm nodule (series 6, image 187) previously 8 mm.

I have known since my first biopsy post progression that the histology of my cancer had changed to one that was more aggressive. This is the first time I have experienced such rapid growth though.

One week from today, on what happens to be my daughter’s thirty-sixth birthday, I shall take my lead in dose of lorlatinib and binimetinib.

In the meantime, I ask for your good thoughts/prayers/sorcery—all appreciated. I need to hit this shit with everything I’ve got.