Not gonna lie. The unholy combo of lorlatinib, carboplatin, pemetrexed, MOVING has been kicking my ass. Oh yeah, and cancer. Two twelve hour one day drives to Toledo and back were not as restful as one might assume. My energy is shot, my skin is shit (long term side effects of lorlatinib not helped by the new stressors) and last night I fell to sleep just imagining that I was a baby held in some loving arms. Breast fed, not with a bottle–the route my hep fifties mom went 😉
Yep. I am spent. Second infusion is tomorrow and steroids came to my rescue today.
Nasty, nasty drug that one. Insomnia, constipation, rage. But also an unnatural sense of energy just when mine was flagging. And not one to waste an opportunity, I got a hell of a lot done today. This new little home of mine is looking just like that—a place that someone would like to come and stay awhile. Maybe hunker down a little.
Hang in there!!! Sending thoughts your way.
No words over here. Just wishes that you didn’t have to be going through this, and know others in same boat. Thinking of you and wishing I were closer (not a full country away!) and could have helped you with your move! When I see a candle, I light it: for you! xoxoxo
You’ve made it your home, hunker down all you need to!👈🏼❤️✊🏼
Keep changing negatives to positives
The tai chi way