My birthday card from my son August. (and a photo bomb from Kumo)
Scrappy as hell, y’all. And a persistent terminal optimist.
After writing my last blog, I had to drive into Boston for an ultrasound. Think johnnies, stirrups, probe. No no fun. And yet, as I lay there on the examination table, I kept saying to myself ‘I’m alive, I’m alive, I’m alive.’ And after the procedure, when it took me an hour in rush hour traffic to drive from Chelsea Mass to the Prudential center in Boston (six miles) I kept repeating it as well.
I get down, really down at times. But I don’t stay there.
Sometimes this takes a formidable amount of will. Depression has shadowed me since childhood. To that end I take an antidepressant and have had a standing appointment with the same (wonderful) social worker for a decade now. But the fact is, my life is fertile ground for sorrow and hopelessness both.
Knowing this, I fight back. In little ways, but ways that matter. When people ask me how I am doing I almost always answer ‘great’. When I fill out the patient reported outcome intakes at every oncology appointment, I give quality of life the top score.
I’m painting and writing and, with only some hesitation, planning for the future. I’m even still (and if this isn’t optimism in the face of progression, I don’t know what is) online dating.
So there you go. In two weeks I’ll have a biopsy and thereafter a better idea as to what the plan of attack is. But in the meantime, I’m not twiddling my thumbs.
Just thought you’d want to know š
Keep living!
Full throttle!
xo Linnea
Living and Standing Strong .
Thanks Hedy. Hope you’re holding in there.
xo Linnea
Thank you for all you share here. The ups, downs, and the all arounds. Whether fighting for or fighting with. You are an inspiration!
Life
Thanks Pamela š
xo Linnea
Yes, we did want to know, Scrap on as only you know how.
Much love
Thanks swedish chica. I am a scrapper.
xo Linnea
You are an inspiration!
Thank you!
xo Linnea
Living life! x
Yes!
xo Linnea
Your real !!!!!!!!!
No other way to go š
xo Linnea
Another beautiful blog. You are a great writer and certainly know how to buck up (a Montana term my family lives by, like it or not)!
Thanks Paula. I grew up in Colorado and I know exactly what you’re talking about.
xo Linnea
Arrgh….. Linnea, You are and continue to be an amazing inspiration. When I get bogged down in my own depression . I frequently think of you and how you have lived your life with the burdens given you and then I am able to see things a bit more clearly. You are a strong and talented woman and as Aug’s card says. “Quite Tough”āš¼ā¤ļø
Thank you pal. I also am blessed in so many ways—such as my dear friends.
xo Linnea
Hello, I’m another ALKie, from New Zealand. I wonder if this is what Dr Shaw might be thinking? https://www.nejm.org/doi/full/10.1056/NEJMoa1508887
You’ve been off crizotinib for a long time – far longer than the patient in this case history.
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