In serious need of some mojo

Plum out of that good stuff.

At the moment, my biopsy is three weeks away. Not so far really and yet also not close enough. Nebulosity. The in between. And for someone who is information driven (that would be me), not a lot of purchase.

I have the best oncologist in the world. There is no doubt she will come up with something but there is also no denying my options are limited. That pesky G1202R mutation that I acquired while on ceritinib has me backed into a corner. Fortunately lorlatinib overcame that particular resistance mechanism.

It was heady stuff; feeling good, and I had a mighty good run. But I also got a little carried away as I allowed myself to believe that maybe, just maybe, I was cured.

Yep. That was fun while it lasted. But now I’m ready to rumble, so to speak.

In the meantime, I am grateful for my formidable group of friends. After my last blog about the over the top copay for Advair, I received lots of offers for assistance. Linda S. got right on it and overnighted me an inhaler. Mucho mucho gracias darling–I am breathing easier because of it. And thank you to the rest of you as well.

But back to that missing mojo. It has been my experience that the best way to refresh that particular feeling is a giant group hug.

So lean in y’all. And squeeze extra tight.

xo

43 responses to “In serious need of some mojo

  1. Come visit us and sing with us on one of our “Love Songs for Lungs” – that’ll get you some good mojo! 🙂 https://youtu.be/NshNIG0Q_i8

  2. Sending you a very large hug right now! I had 650 ml of fluid drained today and am on the same boat. Wish these things would happen sooner! Have a Happy Thanksgiving, we do have a lot to be thankful for.

  3. from one stubborn mutant (G2032R ROS1+) with progression to another (G1202R ALK+),

    Best hopes,

    Craig in PA

  4. Sending you a HUGE hug today. Dealing with my own progression and crossroads as to where to go from here, 650 ml of fluid drained today. I’ll be able to hold another pound of turkey for thanksgiving. #grateful
    Dawn in Vancouver, WA

  5. Hugs!!!!

    Sent from my iPhone

    >

  6. Group hug! Who pinched me?

  7. Big tight Hugs to you and many others

  8. Sending love from Canada. Again, so grateful my mom had everything covered for her ~2 year battle. I think I have some Advair around still of hers.Not sure how long they last but I would be happy to mail you what she had left.

    I was devastated by your news. But, your constant fight, hope and energy always leave me feeling good. Sending you all of the best wishes and energy I have. Thank you for all your have done for the lung cancer community so far. Your blog always comforted me in my worst moments. ❤

  9. Hhhhuuuuuuggggggggg!!!!!

  10. As always, let us know how we can help Linnea. And there’s always warm hugs here if you want to hang out.

    On Mon, Nov 19, 2018 at 5:39 PM life and breath: outliving lung cancer wrote:

    > linnea11 posted: “Plum out of that good stuff. At the moment, my biopsy is > three weeks away. Not so far really and yet also not close enough. > Nebulosity. The in between. And for someone who is information driven (that > would be me), not a lot of purchase. I have the best ” >

  11. Big love and hug out to you. My partner in same situation lorlatonib failed trying to sort out next steps. Biopsy going to strata in Michigan to see if we can get info for way forward

  12. ❤️❤️😘

  13. Sending you lots and lots of love and hugs from out here in Western MA!!! Can’t wait to see you soon and give you a REALLLLLLLL hug!!!! xoxo m & the lees (almost sounds like a rock band….) . ❤

  14. Squeezing 🤝❤️

  15. Squeezed 🤝❤️

  16. I’m squeezing ❤️

  17. I’m giving you a loving healing hug, my dear.

  18. Really really big hug from Cedar Rapids

  19. Huge hug from my family and me.

  20. Thank you Gregg!

    xo

  21. Big warm hug from California. Hoping you get a little pleasure out of knowing how much your blog means to others.

  22. Kathleen Gereghty

    Sending you my biggest hug and sending you lots of positive energy daily. Kathleen

    Sent from my iPad

    >

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